MEDIA RELEASES & REPORTS
2008
08.06.24 The Macular Disease Patient Charter, a bill of rights for people with macular disease developed by AMD Alliance International, was unanimously endorsed by members at their Annual Congress in May 2008.
- Full report: download file
- Macular Disease Patient Charter: download PDF
08.06.02 Retina Hong Kong releases major survey on social-economic impact of macular degeneration, and announces new Foundation to support people living with AMD.
- Full report: download PDF
- Media release: download file
08.05.16 La société française d’Ophtalmologie mène une campagne nationale de sensibilisation sur la dégénérescence maculaire liée à l’âge, une maladie qui touche prés d’un million de personnes en France. La campagne fourni une information intensive sur la DMLA, les facteurs de risque et les mesures à adopter pour assurer la prévention. Pour en savoir plus, visitez: www.dmlainfo.fr
08.05.16 En marge de la campagne nationale de sensibilisation sur la dégénérescence maculaire liée à l’âge, L’association Retina France a mené une action presse ciblée appelée “SOS DMLA” et basée sur le public relations et les communiqués de presse. En savoir plus... http://retina.fr/IMG/pdf/communique_SOS_DMLA_fevrier08.pdf
80.04.25 AMDAI applauds MDF Australia for the launch of Family, Friend & Carer - A Guide. The new publication is an outstanding road map for carers of the blind and vision impaired.
- Press Release: download PDF
- Family, Friend & Carer - A Guide: download PDF
08.04.09 AMD Alliance International applauds IFA Global Congress. more...
08.04.04 On March 28, the Canadian Common Drug Review (CDR) published its final recommendation for Lucentis and we are pleased to let you know that the recommendation was positive, overturning CDR's initial decision. more...
08.04.02 Patient advocacy efforts appear to have had a strong impact, with the National Institute for Clinical Excellent (NICE) releasing positive final guidance for Lucentis more...
08.01.23 British Prime Minister responds to petition demanding use of all treatments for macular degeneration. read PM's response
08.01.22 Frankfurt, Germany: European Patient Charter inaugural meeting . AMDAI members very enthusiastic about AMD patient rights. download file
08.01.11 Right To Sight: Tens of thousands Canadians at risk of going blind unnecessarily. more...
2007
07.11.16 AMDAI endorses the launch of VINCE, the Visual Impairment for Counselling and Emotional Support, a network focused on providing essential psycho-social support to people with vision loss. Some sixty delegates from UK's leading sight loss charity organizations participated in exploratory workshops. more...
07.10.19 Marbella, Spain. AMDAI releases first-ever European qualitative and quantitative data looking at the burden of wet age related macular degeneration from the European patient perspective.
- Press Release: download file
- Reseach Backgrounder: download file
- Survey Q&A: download file
07.10.03 Paris, France : La cellule microgliale rétinienne aurait un rôle dans le développement de la DMLA. download file
07.12.14 UPDATE: NICE reversal welcome news for all. more...
07.06.22 British AMD patients facing draconian situation - INPUT AND ACTION NEEDED URGENTLY! Cruel watchdog is condemning 20,000 more...
07.06.09 AMDAI launches first ever qualitative research on patient perspectives on quality of life with AMD. Patients report the anquish of delayed diagnosis, slow referrals and poor access to the latest treatments.
- Press Release: download file
- Media Q&A: download file
- Slide presentation of research results: download ppt
07.03.29 Prioritizing the Patient, a new report on physician and patient communications about AMD. download file
2006
06.11.22 What's happening in AMD? An answer from AMD Alliance International based on recent medical developments. For the latest report on what's happening in AMD you might also wish to access our report on medical presentations at the annual congress of the American Academy of Ophthalmology. download PDF
06.11.16 Smoking Doubles the Risk of Vision Loss from Age-Related Macular Degeneration (AMD) more...
06.11.02 Science Writers Workshop on AMD, Presented by AMD Alliance International and Lighthouse International. Featuring Johanna M. Seddon, M.D., Jason Slakter, M.D., Bruce Rosenthal, O.D. download PDF
06.09.20 Canada: AMD Alliance International, CNIB, Canadian Ophthalmological Society, The Canadian Association of Optometrists, The Foundation Fighting Blindness and the National Coalition for Vision Health launch AMD week Campaign more...
06.09.19 "Age-Related Macular Degeneration can lead to Depression and Suicide Early Detection is Key Factor in Maintaining Patient Quality of Life" America's leading vision, seniors and research organizations join forces in urgent call for action on AMD. more...
06.09.19 AMD Alliance International and University of London release White Paper on Quality of Life in age-related macular degeneration. download file White Paper backgrounder download file
06.09.19 United States: The Seniors Coalition issues AMD Policy Blueprint to protect America's At-Risk Seniors. download PDF
06.09.18 Australia: AMD Alliance International, Macular Degeneration (MD) Foundation, and beyondblue: the national depression initiative, launch AMD week campaign more...
06.09.17 Retina Hong Kong kicks off World's Largest Amsler Grid more...
06.09.17 Singapore's first-ever AMD week kicks off! more...
06.09.15 AMD Week 2006 more...
06.08.29 Switzerland approves Lucentis more...
06.07.14 EURETINA abstract: Humanistic Burden and Health Resource Utilization Among Neovascular Age-Related Macular Degeneration (AMD) Patients: Results from a Multi-Country Cross-Sectional Study more...
06.07.14 Humanistic Burden and Health Resource Utilization Among Neovascular Age-Related Macular Degeneration (AMD) Patients: Results from a Multi-Country Cross-Sectional Study download PDF
06.06.30 US FDA Announces approval of Lucentis (Ranibizumab) more...
06.06.30 AMD Alliance International Vice Chair leads The Seniors Coalition in applauding Lucentis decision more...
06.06.30 EURETINA abstract: Impact of Neovascular Age-Related Macular Degeneration on Medical Status, Daily Living, and Health Resource Utilization: A Survey of Five Countries more...
06.06.30 Clinical Characteristics and Impact of Neovascular Age-Related Macular Degeneration on Medical Status, Daily Living, Functioning, and Health Resource Utilization: A Survey of Five Countries download PDF
06.05.31 Smoking Causes Blindness more...
06.05.31 Macular Degeneration Global Alliance meeting download file
06.05.31 Don't let cigarettes smoke out your patient's vision download file
06.05.31 AMD Alliance International warns of link between AMD and smoking download file
06.05.31 Follow the AMD Awareness bus through Germany! more...
06.05.15 AMD Action Summit Media Briefing download file
06.05.15 AMD Action Summit Media Briefing: Day One download file
06.05.15 Session Six - Developing the AMD Action Plan: Day Two download file
06.05.15 The Backgrounder: Burden of Illness of Neovascular Age-related Macular Degeneration - an International Evaluation more...
06.05.15 Urgent Action Needed to Combat the Global Rise in AMD-related Blindness more...
06.04.28 Allied organizations make use of AMD Alliance position statement on Avastin
We were honoured recently to hear from Retina Spain that they have translated into Spanish and web-posted the AMDAI position statement on Avastin. Click at this link to see the position statement in Spanish. more...
06.04.28 Stellungnahme zu Bevacizumab (Handelsname Avastin) AMD Alliance International, April 28, 2006 more...
06.04.28 Presa di posizione di AMD Alliance International sul Bevacizumab (nome commerciale Avastin), 28 aprile 2006 more...
06.04.28 Prise de position quant au Bevacizumab (nom commercial Avastin) AMD Alliance International, 28 avril 2006 more...
06.03.31 AMD Alliance issues global call to action on AMD more...
06.01.31 AMD Basics, Toronto Star more...
2005
05.09.20 AMD Global Report download file download PDF
05.09.20 Germany - Campaign Report - Press Release download file
05.09.20 Germany - Campaign Report download file
05.09.07 United Kingdom - Campaign Report - Press Release download file
05.09.07 United Kingdom - Campaign Report download file
05.08.09 AMD Alliance International and Ocusource.com partner in Global AMD education event more...
05.07.20 AMD Alliance encouraged by breakthrough results in AMD research announced in Montreal more...
05.07.20 Progress in understanding the genetics of AMD more...
05.06.29 AMD Alliance International receives Distinguished Award American Optometric Association Low Vision Rehabilitation Section more...
05.01.28 AMD Alliance International to showcase groundbreaking research by four international experts during Vision 2005 more...
2004
04.12.17 Treatment to Help Americans With Wet Age-Related Macular Degeneration Preserve Their Vision Approved by the FDA more...
04.12.16 World Health Organization names AMD as third leading cause of vision loss globally more...
04.10.05 Alliance for Aging Research AMD Information Kit more...
04.09.30 AMD Alliance wins prize for best stand at the UK Labour Party Conference more...
04.09.28 « Une importante enquête de EOS Gallup Europe, dénonce l'ignorance du grand public en matière de protection de la vue » more...
04.09.24 Ignorance threatens Eye Health says major EOS Gallup Europe Survey - UK release Press coverage more...
04.09.20 Ignorance threatens Eye Health says major EOS Gallup Europe Survey more...
04.09.20 The Insight Project: Major education seminars to be held in the US + AMD Week activities supported by the AMD Alliance International in other countries more...
04.09.20 The AMD Alliance International has joined forces with its American members in Educating Seniors on Age-related Macular Degeneration. more...
04.03.20 Vivre avec la dégénérescence maculaire liée à l'âge download PDF
2003
03.10.31 Country Reports on Early Detection and Vision Low Vision Rehabilitation:
- FRANCE: English download PDF , French download PDF
- GERMANY: English download PDF , German download PDF
- IRELAND: English download PDF
- ITALY: English , Italian download PDF
- NETHERLANDS: English download PDF
- UNITED KINGDOM: English download PDF
- SPAIN: Spanish download PDF
- SWITZERLAND: French download PDF, German download PDF
03.09.22 2003 Global Campaign Report download PDF
